Death With Dignitym2

2014 was thought to be my last year here
a diary of posts by Robert M

 

At the age of fifteen I contracted acute rheumatic fever, was in quarantine the first three days of the twelve days I was hospitalized. From that moment on was doomed to have a different life than most other people, I was a “severe” medical risk, a time bomb set in slow motion. At that time I did not know what was in store for me, though I was told some scary stories and that I wouldn’t live past the age of 45. And if I did live past that, it would only because I would have had parts of my heart, if not my whole heart replaced.

Robert M's First Call Into The Norman Goldman Show

Contact me at info@Dying-With-Dignity.com and please Skype me using my Skype name: Dying.With.Dignity

Monday, October 6, 2014

Update October 6th, 2014

Things have not gone as planned in the last month or so. I will not be going to Cedars Sinai as we were maybe hoping and now trying to see if another facility, hopefully New York Presbyterian will take on my situation. 

Not sure exactly what the problem was with Cedars, but they have not responded back to my Denver Health doctor’s requests. 

I’ve been very reluctant to get back onto the operating table for anything. They need to do a catheter procedure where they go through my leg and up into both the left and right sides of my heart. My bovine aortic valve is fairly deteriorated and it really scares the hell out of me to have this done. I’ve had this done three previous times and so I really don’t want to do it again. But they need to do these tests to make sure that I can even be for sure a candidate for these newest procedures and I can have that done here, so I just recently agreed to have that done. Now I am waiting.

The procedure for the TAVR is not as advanced here at CU as they are now doing for the clinical studies at places like NY-P, Cedars, Mayo, Cornell and the like. The leading facility being NY-P. The difference in the procedure available here as opposed to there is quite a bit, the difference in whether the odds are worth it or not.

Part of the problem that I am having is the fact that my cardio doctor at Denver Health/CU and I do not have a good report going on ever since I told her that I was not going to have open heart surgery. They’ve not been happy with me since. So my primary doctor for the last decade at Denver Health is trying to find another cardio doctor to maybe help me figure this out. But nothing is happening fast.

And now my rent has been raised outrageously by my landlord. 15 months ago he raised my rent by 15% and last week he just raised it by another 40%! So trying to figure this all out. 

I’m running out of energy too. Spending more time in bed. Not getting much done anymore now. Broke down and got a handicapped parking placard this last week. 

Thanks for your concerns,


Robert
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Below is the audio clip from the Norman Goldman Show that started this all off for me.
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